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World Prematurity Day – Media Release

MEDIA RELEASE

Canadian Premature Babies Foundation Celebrates World Prematurity Day – November 17

On November 17th, the Canadian Premature Babies Foundation-Fondation pour Bébés Prématurés Canadiens (CPBF-FBPC) through its network of parent and health care partners will once again light up Canadian landmarks in purple for World Prematurity Day. The lighting of Canadian buildings and landmarks is part of a global initiative called the “Global Illumination Project”. Member organizations of the World Prematurity Network aim to raise awareness for premature birth and associated health complications, which can last a lifetime.

Based on recent statistics, one in 12 Canadian babies is born prematurely, and premature newborns comprise the largest pediatric patient group in Canada.

The Canadian Premature Babies Foundation is a unique parent-led organization. In 2016 the Foundation …

  • Saw exponential growth in its national support network, which includes parents of premature children living throughout Canada
  • Launched and delivered peer-to-peer training to parent groups
  • Collaborated with the Federal Government on an information package about benefit programs for parents of infants born preterm
  • Released Early Beginnings, a book of prematurity stories and information for parents
  • Developed an introductory package for NICU parents called Welcome to the Club, which will be translated into 6 languages

Following a recent peer support training session hosted by CPBF-FBPC parents said:

The presentation by the Canadian Premature Babies Foundation helped me realize that the biggest part of helping current NICU parents as a veteran parent is to listen; to sit in the moment with them. Not to fix their pain, but to offer comfort by providing the listening ear of someone who has lived and survived.    

It was really helpful talking and working through the different scenarios with the facilitator and the other veteran parents.   Hope and despair are inextricably intertwined when one has a loved one in the NICU.  The facilitator helped me to figure out how to begin to handle and deal with some of these intense feelings for which I am deeply grateful.

Stay tuned for an announcement on World Prematurity Day of a special challenge that CPBF-FBPC will be issuing to parents and clinicians across Canada.

About the Canadian Premature Babies Foundation

The Canadian Premature Babies Foundation was founded in 2012 by Katharina Staub, a mother of prematurely born twins. The Foundation’s mission involves supporting the best standards of care for premature babies and to give premature babies and their families a voice across Canada.

Kate Robson, Executive Director, and mother of two prematurely born children

Carolyn Leighton-Hilborn, Director of Communications, and mother of three prematurely born children

For the Canadian Premature Babies Foundation-Pour la Fondation pour Bébés Prématurés Canadiens

http://cpbf-fbpc.org              Twitter                    Facebook

Please direct media inquiries to Carolyn Leighton-Hilborn,

carolyn.leighton-hilborn@cpbf-fbpc.org

 

 

cpbf-wpd-2016-snapshot-image

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